Tag: Cushing’s

Today is Barbershop Quartet Day!

National Barbershop Quartet Day is observed annually on April 11.  Barbershop quartets have a way making the heart flutter.  Very often they transport us back to a simpler time or at the least make it stand still. Barbershop quartets are a style of a cappella or unaccompanied vocal music.  Their music features songs with understandable lyrics …

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Little Free Library

  So far, Tom has filled in the cracks that appeared during shipping and has sanded everything down, getting ready for painting.   We’ve decided on a bright blue to match my car and a yellow roof (to make it Cushing’s colors!)   I’ve ordered stamps for the insides of the books, pencils with our …

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Giving Thanks, Day 22

  I am so thankful for all my doctors but today I am thankful for Dr. Amir Al-Juburi who saved my life by removing my kidney cancer (renal cell carcinoma).   In 2006 I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for …

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Giving Thanks, Day 19

I am thankful, believe it or not, that I had Cushing’s. Mind you, I wouldn’t want to have it now, although diagnoses and surgeries seem “easier” now.   Having Cushing’s taught me a lot, including how to stick up for myself, how to read medical books to learn more about my disease, how to do …

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Giving Thanks, Day 3

I hope I’m not jinxing myself but today I am thankful that I haven’t had any migraines for a while.   It’s not “just” not having migraines, but the fact that, should I get one, there’s nothing I can do about them anymore.   I used to get migraines quite often, a hormone thing probably. …

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NED for 14 years!

NED stands for No Evidence of Disease Amazing! It’s Been 14 Years, Already. Today is the fourteenth anniversary of my kidney cancer surgery.  These fourteen years have been bonus years for me.  What were the odds I’d get kidney cancer? According to my “risk factors”, I “should” have had colon cancer because both parents and …

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40 Days of Thankfulness: Day 16

I am thankful, believe it or not, that I had Cushing’s. Mind you, I wouldn’t want to have it now, although diagnoses and surgeries seem “easier” now.   Having Cushing’s taught me a lot, including how to stick up for myself, how to read medical books to learn more about my disease, how to do …

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40 Days of Thankfulness: Day 12

I hope I’m not jinxing myself but today I am thankful that I haven’t had any migraines for a while. It’s not “just” not having migraines, but the fact that, should I get one, there’s nothing I can do about them anymore. I used to get migraines quite often, a hormone thing probably. I spent …

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Day 5: 40 Days of Thankfulness

  Today I am thankful for naps, even longer than those on the chart above.  Ever since my Cushing’s days in the early 1980’s, I’ve needed long daily naps – like 3 hours each – to get through the day. My endo says I’d have more energy if I took more Cortef, but when I …

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Day 4: 40 Days of Thankfulness

  I am so thankful for all my doctors but today I am thankful for Dr. Amir Al-Juburi who saved my life by removing my kidney cancer (renal cell carcinoma). In 2006 I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the …

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