Tag: Cushing’s

NED for 13 years!

NED stands for No Evidence of Disease Amazing! It’s Been 13 Years, Already. Today is the Thirteenth Anniversary of my kidney cancer surgery.  These thirteen years have been bonus years for me.  What were the odds I’d get kidney cancer? According to my “risk factors”, I “should” have had colon cancer because both parents and …

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Day 20: 40 Days of Thankfulness

I hope I’m not jinxing myself but today I am thankful that I haven’t had any migraines for a while.   It’s not “just” not having migraines, but the fact that, should I get one, there’s nothing I can do about them anymore.   I used to get migraines quite often, a hormone thing probably. …

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Day 14: 40 Days of Thankfulness

I am thankful, believe it or not, that I had Cushing’s. Mind you, I wouldn’t want to have it now, although diagnoses and surgeries seem “easier” now.   Having Cushing’s taught me a lot, including how to stick up for myself, how to read medical books to learn more about my disease, how to do …

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Day 12: 40 Days of Thankfulness

  I hope I’m not jinxing myself but today I am thankful that I haven’t had any migraines for a while.   It’s not “just” not having migraines, but the fact that, should I get one, there’s nothing I can do about them anymore.   I used to get migraines quite often, a hormone thing …

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Day 5: 40 Days of Thankfulness

  Today I am thankful for naps, even longer than those on the chart above.  Ever since my Cushing’s days in the early 1980’s, I’ve needed long daily naps – like 3 hours each – to get through the day. My endo says I’d have more energy if I took more Cortef, but when I …

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Day 4: 40 Days of Thankfulness

  I am so thankful for all my doctors but today I am thankful for Dr. Amir Al-Juburi who saved my life by removing my kidney cancer (renal cell carcinoma). In 2006 I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the …

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Barbershop Quartet Day!

National Barbershop Quartet Day is observed annually on April 11.  Barbershop quartets have a way making the heart flutter.  Very often they transport us back to a simpler time or at the least make it stand still. Barbershop quartets are a style of a cappella or unaccompanied vocal music.  Their music features songs with understandable lyrics …

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Giving Thanks, Day 6: October 23, 2017

  Today I am thankful for naps, even longer than those on the chart above.  Ever since my Cushing’s days in the early 1980’s, I’ve needed long daily naps – like 3 hours each – to get through the day. My endo says I’d have more energy if I took more Cortef, but when I …

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Nashville

Next week I’m going to a conference in Nashville for one of my jobs.  The last time – actually the only other time – I was there, it was for a Cushing’s Conference. There are two albums of photos on Facebook from that conference.  Part one and Part two (Duh!) It makes me sad just …

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NED for 9 years!

  NED stands for No Evidence of Disease   Amazing! It’s Been 9 Years, Already.   Today is the Ninth Anniversary of my kidney cancer surgery.  These nine years have been bonus years for me.  What were the odds I’d get kidney cancer? According to my “risk factors”, I “should” have had colon cancer because …

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