Summer in Edinburgh, Scotland, kicks off with an evening of whimsical revelry. Colorful characters parade atop a hill, dancing and marching to the beat of pounding drums. Fires blaze, warming the air with their bright, smoky …
National Bugs Bunny Day is observed each year on April 30. Bugs Bunny is the famous cartoon character best remembered for his roles in Looney Tunes and Merrie Melodies produced by Warner Bros. He …
This is going to sound really stupid but today I am thankful for my dropbox.
I have files all over the place and I work on them on different computers (PC and Mac), at home or at work, on my iPhone, iPad and other places. If I’m away from home without any files (rarely happens!) I can still access my stuff online and do with it whatever I want.
I am really lazy and it’s so nice to have my files synced everywhere. I don’t have to try to find a cable, zip drive or SD card. Sometimes I’ll find an image or a program I want to install on a different computer and I just stash it in my dropbox. When I’m done, I delete it or move it to its permanent home to save space on the dropbox.
I had the free version for many years and was always monitoring how much space is available. I finally upgraded to a paid version when I had a lot of files for work – and a friend’s entire website backed up.
This really makes my life a little easier and, for that, I’m very thankful today!
Today, I am thankful for Saturdays. It’ the one day of the week I don’t have to be anywhere, do anything. I can do webwork, if I want, but I don’t have any deadlines.
I never have doctor appointments on Saturdays, no medical testing.
No piano students. I don’t even talk to prospective students on Saturdays.
It’s a day for maybe brunch, a trip to the farm, maybe a little TV, maybe (most assuredly!) a nap.
Saturdays are family days, even though our family is smaller than it was.
TiVo. I love that I can fast forward through commercials and have all my favorite shows waiting for me when I lie down on the sofa (and fall asleep!)
I probably wouldn’t have gotten one of these when we did but our son got us one for Christmas many years ago. He had it all set up and ready to go on Christmas morning.
At that time, I had no idea of its capabilities but now, I don’t think I could live without it!
We’ve been fortunate to be able to travel to several interesting places.
Some, like Iceland, we just lucked in to. We’d wanted to go to Ireland but the travel agent couldn’t get us in at any time over that summer. She did get us a deal where, if we flew Iceland Air, they’d give us a free week in a hotel in Iceland before flying us to London. Duh! Wonderful trip.
A couple years ago we were in Costa Rica and took a day trip to Nicaragua where we stood at the rim of Masaya, a live volcano.
Our bus driver was a very good driver who told us all about the history of Skagway and the surrounding areas. Our first stop was Liarsville (http://www.klondiketours.com/goldcampshow.html), a tent village for gold miners. It was called Liarsville because many newspaper reporters were there publishing tales of how “easy” it was to find gold and become rich. No Way! The locals did a show for us and let us pan for gold. Of course, most everyone found some little gold flakes. A very hard way to make a living!
We made our way up the White Pass on the Klondike Highway to a 3,000 ft waterfall, Dead Horse Gulch (a lot of pack horses couldn’t make it the whole way), the Moore Bridge, Yukon Suspension Bridge at Tutshi Canyon and up over the West White Pass into Fraser British Columbia Canda, the same way that the miners had to walk or go with pack animal and 2,000 pounds of supplies. Much easier by heated bus! It was very scenic and we took lots of pictures.
At the summit of that, in Fraser, British Columbia, we got on the White Pass & Yukon Route (WP&YR) Railroad train.
The WP&YR was originally built to help those miners who were hauling the ton of supplies up the pass but they finished building the railroad a year after the gold rush had ended. There’s more info about this railroad at www.wpyr.com We went over trestle bridges, through tunnels, over glaciers. Definitely a worthwhile trip.
Today I am thankful for naps, even longer than those on the chart above. Ever since my Cushing’s days in the early 1980’s, I’ve needed long daily naps – like 3 hours each – to get through the day.
My endo says I’d have more energy if I took more Cortef, but when I do, I gain more weight. Of course, I *might” have more energy to work off the weight.
<sigh>
So, I nap and I’m very thankful that I can arrange my life to accommodate my long naps.
I am so thankful for all my doctors but today I am thankful for Dr. Amir Al-Juburi who saved my life by removing my kidney cancer (renal cell carcinoma).
In 2006 I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the biopsy to be completed, I started noticing blood in my urine and major abdominal cramps. I left messages for several of my doctors on what I should do. I finally decided to see my PCP after I got my husband home.
When Tom was done with his testing, his doctor took one look at me and asked if I wanted an ambulance. I said no, that I thought I could make it to the emergency room ok – Tom couldn’t drive because of the anesthetic they had given him. I barely made it to the ER and left the car with Tom to park. Tom’s doctor followed us to the ER and became my new doctor.
When I was diagnosed in the ER with kidney cancer, Tom’s doctor said that he could do the surgery but that he would recommend someone even more experienced, Dr. Amir Al-Juburi.
Dr. Amir Al-Juburi has been so kind to me, almost like a kindly grandfather might be, and he got rid of all 10 pounds of my kidney and cancer.
I owe him, the original doctor, and my Cushing’s doctors (who will be featured later!), my life.
Today, since it’s a “teaching day”, I’m thankful for my piano studio, my students, and my piano 🙂
When I was growing up, my dad was a minister, meaning we lived in whatever parsonage the church chose to let us live in. The one we had in Pawcatuck, CT had an upright piano that someone had put out in the sunroom. Not the best place for a piano, but I digress.
Since we had the piano already, someone – probably my mom – decided that I would take lessons. We had the organist from the Baptist church just across the river in Westerly, RI
Apparently, Clara Pashley was fondly remembered at the church (now Central Baptist Church) since she was mentioned in an article from 2010.
Miss Pashley walked to our house each week and taught me (and my mom who was always listening in) piano for the grand sum of 25 cents.
I started with Ada Richter’s classic Teaching Little Fingers to Play, which has now been morphed into the John Thompson library.
From there, it was the Michael Aaron series, and some sheet music.
There was no music store in our town, so I have no idea where any of this music came from – but I still have it all.
My parents did very well for their quarter a week investment, especially since my mom paid good attention and was able to beef up lessons she’d had as a child. Later on, she played well enough that she was church organist for a local Roman Catholic Church.
But I digress…
In those days, kids couldn’t do a whole lot of activities, so in 6th grade, I decided I wanted to be a Girl Scout. Bye, bye Clara.
Girl Scouts didn’t last long but I did play piano in a talent show. I remember, I carefully cut Burgmüller’s Ballade out of my Michael Aaron book and made a nice construction paper cover. (I still have this, too)
I doubt that I played this well but here’s what it was supposed to sound like:
A few years intervened and we moved to Springfield, MA. The parsonage piano there was in terrible shape and in the dark, never-used basement. But I decided to make it mine and cleared up the area around it and started “practicing”.
My Junior or Senior year of High School I decided I wanted to major in music in college. I decided to learn, on my own, a piano arrangement of Aragonnaise by Jules Massenet. I have no idea why or where that sheet music came from but I started working furiously on this piece.
Hopefully, at some point, it should have sounded like this:
I started pedaling (no pun intended!) my music to the Universities of Connecticut and Massachusetts and ended up at UMass Amherst since we were state residents.
Early morning gym classes (usually swimming), then wet hair traipsing across campus to music theory in winter 5 days a week. AARRGGH!
But I stuck it out.
My wonderful piano teacher, Howard Lebow, was killed in a car accident my sophomore year and I was devastated. There was about him in a post on January 26, 2018 over on https://oconnormusicstudio.com
I took yet another break from piano lessons – but I kept playing.
After DH graduated, we moved to Milwaukee, WI for his graduate school. Besides working 2 jobs, I found time to commandeer the practice rooms at the University of Wisconsin. I also found a teacher at the Schaum School of Music. She was amazed that I had no piano at home to practice on.
When we later moved to Alexandria, VA my DH gave me a choice of new car or piano. So, I found a used piano. The owner had acquired it in a divorce and wanted it gone. Yesterday. She even paid to move it out of her apartment.
The new-to-me piano took up half our living room. When my parents came to visit, their feet were under my piano as they slept on cots.
I found yet another new piano teacher and she is still my best friend to this day.
That piano moved to several locations before I bought a brand new Yamaha grand piano. The movers accidentally brought in the wrong one and I made them return it. The people who lived in an apartment were probably unhappy when they had to return my piano and take their own new baby grand back.
I started teaching as a traveling piano teacher in Silver Spring, Maryland. I continued that in Wilmington, DE.
When we got to Fairfax, VA I decided no more traveling. Students would come to me. And so they have since 1973.
What is supposed to be our living room is filled with music books, electric keyboards, the grand piano, 2 organs, 2 violins, 2 clarinets, a hand-made (by me!) dulcimer and other musical “stuff”.
Piano playing has gotten me through the worst times of my life. Teaching has been a lifeline for me, as well.
I am so thankful for the students who have stayed with me over the years.
Since I started attending Cushing’s events, I’ve always tried to rent a PT Cruiser. There’s just been something about them that I liked.
A couple of years ago, after my son was out of school, I was getting tired of driving the Mom-Carpool-Van everywhere. I think my mom was getting tired of stepping up into it, too. She doesn’t drive anymore, so she relies on whatever vehicle I’m driving to get her to appointments. So, I was delighted when she offered to pay for part of it. She didn’t realize it was going to be bright blue, though. I think she was thinking of navy or something more dignified.
Anyway, I had the car picked out, and the exact color I wanted and set off to the car dealership with my specs. They told me that the Cruiser didn’t come in this shade of blue. I’m sure that they wanted to sell one of the colors they had on the lot.
I got back to them and told them that I found this car online and I could go get it myself. Suddenly the dealership was able to get it for me, too, so I won out. WooHoo.
I’m just loving this car. 🙂
From a Cushing’s get-together in Columbus, OH, 2007, the yellow version 🙂
Please add your bio. Your information will help others. If anyone would like to do something for the Cushing's Awareness Challenge but you don't have (or want to have) a blog, why not consider adding your bio?
MaryO’Note: An interesting idea, offering a cash voucher for referring new patients! Dr. Friedman is an expert in pituitary, thyroid and adrenal issues as well as several other endocrine conditions, while most endocrinologists specialize in diabetes or just thyroid disease. He has seen and diagnosed more patients with Cushing’s disease, growth hormone deficiency or adrenal […]
This study confirms the significant impact of prolonged high cortisol exposure on cognitive function and identifies key risk factors. The nomogram model offers robust performance, providing a valuable tool for managing Cushing's disease patients’ cognitive health and informing strategies for other cortisol-related disorders.
MaryO’Note: This is really basic information. Maybe News 9 should have checked with a doctor who has actually been diagnosed with Cushing’s or at least tested for it!
Cushing’s syndrome is a rare disorder that occurs when the body is exposed to too much cortisol. Cortisol is produced by the body and is also used in corticosteroid drugs. Cushing's syndrome can occur either because cortisol is being overproduced by the body or from the use of drugs that contain cortisol (like prednisone)…
Did't we all do this? A young woman saved her own life after successfully self-diagnosing cancer/Cushing's that doctors had missed because she researched her own worrying symptoms on TikTok.
Cushing’s Disease is common in dogs but rare and hard to diagnose in people. That’s why University of Georgia researchers are leveraging canine treatments to find new solutions to battle the condition in humans. This collaboration between veterinary medicine and human health care is just one example of how UGA uses a Precision One Health […]
#3– DO NOT MAKE IT “PRETTY” OR “NOT SO OBVIOUS”. I can not stress this enough. Ladies I know that you want the cute ones that look like normal bracelets, and have pretty charms, etc on them… THE ENTIRE point of a medical alert bracelet is that someone needs to see it and know that […]
Cushing's Disease is a rare condition caused by excessive production of cortisol, a hormone essential for various bodily functions. It is a specific form of Cushing's Syndrome, where the overproduction of cortisol is due to a tumor in the pituitary gland. The condition affects 10 to 15 people per million each year, predominantly women between […]
Adrenal insufficiency is a condition where the adrenal glands don't produce enough of certain hormones, primarily cortisol and sometimes aldosterone. This disorder can be categorized into primary (Addison's disease) and secondary forms.