Right now, I’ll give thanks when the Roto-Rooter guy finally arrives.
Nov 14
TiVo. I love that I can fast forward through commercials and have all my favorite shows waiting for me when I lie down on the sofa (and fall asleep!)
I probably wouldn’t have gotten one of these when we did but our son got us one for Christmas many years ago. He had it all set up and ready to go on Christmas morning.
At that time, I had no idea of its capabilities but now, I don’t think I could live without it!
Nov 13
A Golden Oldie – In 2017, i was sure grateful that my Growth Hormone finally arrived (L-o-n-g saga to follow)
Wednesday, October 25, 2017, 11:08 PM on Facebook
Me: My $450 monthly co-pay refrigerated medication was overnighted to me yesterday, arrived a couple miles from my house at 7:05 this morning. UPS couldn’t get it to me today so they’ll “deliver it tomorrow between 12:30-4:00” .If that ice is melted, the medication is ruined. I see angry phone calls tomorrow.
Friend 1: My Specialty pharmacy replaces it free of charge if that happens. Or at least that’s what they tell me will happen. I asked because our UPS driver is terrible.
Me: We’re on the phone with the pharmacy right now.
Friend 2: OMG, you have one of those copays too?
😡 (Part D? So you have the same donut hole joy we do in Jan/Feb?)
I hope the pharmacy replaces/handles it. “At least” it’s tracked, so clearly documented as being en route for too many hours.
Me: Yup. People not on Medicare can get this close to free.
🙁
Still on the phone.
🙁 I hate this, ummm, stuff.
Friend 2: Ditto. The drug companies can give it for $25/copay with private insurance, and some f’d up anti-kickback statute prevents them from doing the same for anyone on federal insurance, including Medicare, even when it’s under patent or otherwise has no
generic (which is the point of the damn statute). 😡
The drug companies HAD (in our case, until this year) worked around it by funding independent patient copay programs to avoid the bad PR/increased regulation risks from being like Gleevec a decade ago (let’s bankrupt the cancer patients for whom this works and keeps them in remission indefinitely!), but at least with the myeloma oral chemos they’ve pulled their funding and the copay assistance programs have shut down, AND they’re raising the prices 20% (in the US, not countries that can legally, oh, bargain with pharm companies) to cover other drug failures. (I’m sure they’re hardly turning any profit at all, though, and the combined actions are totally 100% necessary. And I’m someone who *wants them* to turn a good profit so they’re incentivized, but come on. It’s absurd that the $$$ drugs that are a quick sub-q injections in an office building is fully covered by Part B and supplemental, whereas the “patient convenient” pills cost one $13k or so annually in copays.
Friend 2: But aside from my thread jacking rant (😳), I really hope you’re a) not entirely out right now, and b) it’s resolved at no additional cost to you or having to stay home again all day to sign for delivery.
😞
Me: We’re still on the phone
🙁 This is the 4th person.
This person on the phone can’t guarantee that it will be still cold but is hesitant to send another shipment at no cost
Friend 2:
🙄 Will they send at no cost if it arrives ruined? Like, you can have a time stamped photo and video of melted ice, and the tracking info with a delivery time stamp?
😕
It should really come out of their insurance or likely-contract with UPS.
Me: Don’t know yet but they’ve added a 5th person on the line. This can’t be the first time UPS messed up a temperature-sensitive medicine.
Now they’re going to call back in the morning. (HAHA)
🤣
Friend 2: I *constantly* want an eyeroll reaction button on FB. Good luck, and as long as you don’t run out before it comes I do have faith that you’ll end up not-screwed! (It’s just going to cost you time and frustration vs a second $450.)
Me: Still on the phone. This is nuts. I have 1 more cartridge (about 15 days worth)
Friend 2:
👍🏽 to enough on-hand,
🙄
🙄
🙄 to the phone mess?
Me: Phone call is over, nothing resolved. 5 reps, a couple robots and background music.To be continued in the morning…
Friend 3: I had that happen but it would have made it 3 days. I told them the cost and how long it could be in shipping. If they were to do as planned, it would be on them. They got a courier and I got it that night.
Friend 4: I would report it to whom ever you get the medication from . When I was getting a refrigerated medication they would never send them to arrive on a Sat.or around the holidays. They always made sure I got it next day Shipment !
Me: Mine is marked “next day” and they ship it by UPS Next Day Air Saver®
Me: I guess they saved the money but the Next Day got lost somewhere.
Friend 5: UPS explained to me that when the package is labeled “Air Saver” UPS can deliver the package anytime that day. If the package is labeled just Next Day Air, they have to deliver it in the morning. The problem is that the RXplan won’t pay the additional amount required by omitting the air saver.
Friend 6: Praying you get this mess resolved!!!
Friend 7: This is what shipping insurance is for; it’s between the pharmacy and the shipper. ETA: only stable up to 24 hrs at room temp.
Me: Mine is only supposed to be between 2° to 8°C (36° to 46°F)
Friend 7: and starts losing potency quickly if not. Me: I know
🙁
Friend 5: Mary, I had the same problem on a day Texas temperature was 104 degrees. UPS delivered my GH the correct day but after 7 pm. The medication was warm when it arrived. My specialty pharmacy gave me a hard time about it. I phoned the manufacturer and talked to a nurse on the support team who said the med needed to be replaced and to have the pharmacy contact her if needed. I called the pharmacy and argued with the pharmacist for 15 minutes. I asked him if he wanted to be responsible for my taking a medication that wasn’t safe. He finally agreed to replace it. The box with my med was only half covered by the cold packs, and the tracker didn’t show damage, so the pharmacy argued about replacement. I responded with the fact that those trackers are not always accurate. They can and do fail. If he had continued to argue, I would have insisted he talk to the nurse with whom I spoke.I called my insurance plan and complained about the pharmacy. If you call the manufacturer of your med, be sure to get the name of your contact there. Good luck. I’m sorry you have that hassle.
Friend 8: So sorry!! Hope it gets to you in good, COLD condition. What an aggravation for you.
Friend 9: Refuse it… they replace it
Me: This doesn’t require a signature so they usually just drop it and run. Luckily, we have a dog who will sound the alarm.
Friend 9: Oh and Ask for fedex delivery all of the time
Me: 4:31 PM. The “window” today was 12-4:30. It’s still not here and back on the phone.
Me: I forget to mention that it’s going to take 8 days to track this package. Egads!
Me: I had to leave. Tom sent me a text “Donna from last night Called at 5pm I told her we were now considering replacing Humana.They are declaring the package lost and sending a replacement shipment immediately.It will arrive by 10:30 am Friday”. We’ll see! Several hours of phone calls and 15 people on their side. Aarrgghh
Friend 2: I will say that FedEx has been really consistent with ours (which ironically would basically be fine if lost for a few days, aside from extreme temperature ranges), though the whole designated “morning” and “afternoon” windows are a joke. (“Afternoon” has come before 8 am, “morning” at 3:30pm…but always the correct day! Just irritating since it’s so regulated – next-gen thalidomide, all those birth defects – it *has* to be signed for.) In case they’ll let you request FedEx after this.
🙄
Me: Today’s meds are coming UPS again but it shows as “Out for Delivery” today. Then, again, it said that on Wednesday, too. The difference is today has to be signed for and it’s supposed to be here by 10:30 so I can take my mom to a birthday lunch.
1 hour, 15 minutes and counting…
Nov 12
Today I am thankful for my church choir. A few years ago the “low voice choir” formerly the Men’s Choir will be singing this:
I’ve had a long history with singing from the time I was a kid singing in the choir at my Dad’s church in Springfield, Mass.
In High School we had a great choir and it was the time before “political correctness” would have banned us from singing such wonderful classical music like Brahms’ German Requiem.
In college, as a music major, there were choirs and when we finally got to our current home, I joined Sweet Adelines.
I was a member of Sweet Adelines for 10 years, singing bass, before Cushing’s robbed me of that particular pleasure. SA takes lot of energy between rehearsals, performances, competitions, traveling. I just loved it but I couldn’t keep up.
My old chorus, but years after I left:
For a few years, I belonged to a local woman’s group but even that got to be too much after a while. There wasn’t the traveling or the competitions but rehearsals and performances cut into that energy.
A few years ago, our church choir director opened up the opportunity to sing for just the Christmas Cantata. No long-term commitment and only half the rehearsal time for about 10 weeks.
I hadn’t sung anywhere outside my car for about 10 years but, with trepidation, I signed up. Because of my bell-ringing and work with children’s choirs, I knew most of the other choir members and that made it a LOT easier on shy-me.
Christmas came and singing with the choir and orchestra was just fantastic. There was the invitation to stay, to become a part of the choir for good but I had my Cushing’s Interviews on Thursday nights and I couldn’t see how I could work all this in.
Then, the choir sang How Lovely Is Thy Dwelling Place from Brahms’ German Requiem and I was hooked. How could I not join?
So, I moved the interviews to Wednesday nights and Thursdays are free for choir rehearsals.
Nov 11
I’m not sure how Veterans Day turned into a Monday holiday and a day to sell stuff, but then, most every holiday has turned into a day for stores to run “sales”. Possibly, the original intent was to give our veterans a break but it has sure morphed away from that.
Veterans Day is supposed to be a day to thank those who have served.
From the Constitution:
Whereas the 11th of November 1918, marked the cessation of the most destructive, sanguinary, and far reaching war in human annals and the resumption by the people of the United States of peaceful relations with other nations, which we hope may never again be severed, and
Whereas it is fitting that the recurring anniversary of this date should be commemorated with thanksgiving and prayer and exercises designed to perpetuate peace through good will and mutual understanding between nations;…
But I digress. This year, today is also Remembrance Day in the UK – including Scotland where my grandfather was a soldier in the Black Watch.
I never met my grandfather. He had died in Peshawar, India, fighting for the Black Watch during World War l. Peshawar was on the northern frontier of British India, near the Khyber Pass.
In 1947, Peshawar became part of the newly independent state of Pakistan after politicians approved merger into the state that had just been carved from British India.
We have a trunk of his belongings, though, and it’s very interesting to recreate his life.
My dad was born in Scotland in 1913.
In 1914, my grandfather was involved in this:
On the outbreak of war there were seven Black Watch battalions – for in addition to the Regular 1st and 2nd Battalions and 3rd (Special Reserve) Battalion there were a further four Territorial ones which had become part of the Regiment in 1908. They were the 4th Dundee [Mary O’Note: I’m pretty sure this was his, since that’s where my dad was born], 5th Angus, 6th Perthshire and the 7th Battalion from Fife. The 1st Battalion was in action at the very start of the war taking part in the Retreat from Mons before turning on the Germans at the River Marne and the subsequent advance to the Aisne. Trench warfare then set in and the 2nd Battalion arrived from India, both battalions taking part in the Battle of Givenchy. Meanwhile the Territorial battalions had been mobilised at the start of the war but only the 5th was in action in 1914.
I guess this is why I love the Pipes and Drums of the Black Watch so much.
Thanks, Grandpa!
The Edinburgh Tattoo had been on my bucket list for a long time since my grandfather was in the Black Watch and I just love to hear bagpipes. Even my cellphone ringtone is Scotland, the Brave.
My mom says that my Grandfather’s name is inscribed as a war hero in Edinburgh Castle, where the Tattoo is held. You know, I’ll find that!
Thanks so much Tom and Frank and everyone who served the US and Europe.
Nov 10
This is going to sound really stupid but today I am thankful for my dropbox.
I have files all over the place and I work on them on different computers (PC and Mac), at home or at work, on my iPhone, iPad and other places. If I’m away from home without any files (rarely happens!) I can still access my stuff online and do with it whatever I want.
I am really lazy and it’s so nice to have my files synced everywhere. I don’t have to try to find a cable, zip drive or SD card. Sometimes I’ll find an image or a program I want to install on a different computer and I just stash it in my dropbox. When I’m done, I delete it or move it to its permanent home to save space on the dropbox.
I had the free version for many years and was always monitoring how much space is available. I finally upgraded to a paid version when I had a lot of files for work – and a friend’s entire website backed up.
This really makes my life a little easier and, for that, I’m very thankful today!
Nov 08
Today I am hugely thankful that the last major issue we had here was in 2013 when Tom had his heart attack. That event caused me to start a whole new blog to post about our experiences.
Adapted from https://maryomedical.com/category/other-medical/bees-knees/
It all started on our 40th wedding anniversary, when I fell on my knee on the way to visit DH in the hospital – he’d had a lot of nerve to have a heart attack on our anniversary.
The very first of the Bee’s Knees series was February 28, 2016. I had no idea it would go on so very long., until my knee replacement surgery on March 9, 2023.
Finally, December 21, 2022, I wrote in this post:

From the last post…12/4/2022 And, there was good news and some surprising news. I got to the doctors office and right away they took x-rays. The results were “Evidence of end stage bilateral knee OA, L>R. Evidence of complete joint space narrowing. Evidence of osteophyte formation. Evidence of cyst formation“
I had no idea that my right knee was as bad. I guess I’ve been so focused on my left that it never occurred to me that I might have other issues.
The term “end stage” was a bit freaky. That sounds to me like I should be bedridden or something.
~~~
12/17/2022
So, I’ve scheduled the surgery but i don’t have a specific time yet – I do have a date and a date for follow up and dates for physical therapy.
My dental clearance didn’t go well yesterday.
The new dentist never got my multi-page form and asked me for it in several emails and texts. I had filled it out as soon as I made the appointment and emailed a copy which they never got. Fortunately, I printed it out.
The parking situation was bad, I hadn’t considered that it was a mall-type place and just before Christmas. After circling the buildings a few times, I had to park in a parking garage and walk. Remember, I’m doing this because of knee surgery.
I got to the building and…I was stuck in the elevator. I tried pushing any and all buttons but I never moved. Finally, I called the office and told them I was in the elevator and they sent someone out who pushed the button on the second floor and I started moving up.
The receptionist didn’t know who I was or why I was there but I had that 8-page printout of their form. I was surprised to see a bowl of candy canes on the main desk – really?
I finally went back and was (very slightly) calmed by the fact that the background music was Mannheim Steamroller.
I told the dental assistant what she would have known had they seen/read my form: I have been terrified of dentists since I was thrown out of one when I was a child (I’ll share more about this later), I have a very small mouth and a bad gag reflex.
She did the preliminary xrays and finally, the real dentist came in. She never looked at me but told my back that she wouldn’t approve me for surgery because there was a “lot of work she wanted to do first.”
I escaped to the front desk and the printer was broken. No receipt for my payment and no copy of a treatment plan. The person assured me that she would email them to me.
I was very leery of that elevator, so I took the stairs and walked back to my car.
Friday and Saturday and neither the treatment plan or the receipt for payment ever arrived.
I tried to log into their system to see if I could get the info that way and I’m not listed as a patient. It did ask me to fill out the forms…again.
Along about now, I decided that this wasn’t the dental practice for me so I found a new dentist, located way closer, on the first floor, in my old bank. I see him Monday. For a person terrified of the dentist seeing 2 in 2.5 days is amazing. I must really want to get my knee fixed!
On Saturday night, reject-dentist asked for a review. I’m waiting for new-dentist to be sure I’m not going back before I fill it out but I don’t think they’ll want to see what I have to say!
When getting dressed on Sunday morning, I found a small cut on my lip, possibly from Friday’s visit and then a filling fell out. Hmmm. Was she creating some of the work she wanted to do?
Monday, new dentist. I got to the new, closer dentist and they also had candy out in the waiting room. Also, they didn’t get my new patient forms and this is starting to look like a rerun.
They took me back and the receptionist was very kind and gentle and she listened to my bad dentist stories from long ago and last Friday.
More x-rays, the dentist came in and he talked to me, too. After the review and in-mouth checkup, he also wants to do a lot of work BUT he is working around my upcoming cruise and he thinks he can get this done so I can keep my surgery schedule. What a change from reject-dentist.
Unfortunately, that means I get a root canal and crown later today. But still. More after he actually does some work!
My TKR (total knee replacement) surgery is scheduled for 2/2, which is Groundhog Day. I’ve been telling people I hope it doesn’t mean I have to keep repeating my surgery! Now, it seems I keep repeating dental visits, too.
Later Monday, December 19, 2022 – the afternoon wasn’t as bad as I remembered partly because somehow, my root canal had closed up. The dentist said that was “good news and bad news” because I had saved myself from the full treatment today AND saved a bit of money – like $1,000. I guess the bad news is if i ever get decay under my new crown, I won’t have any pain to let me know. Sounds like good news to me.
Interestingly, the beginning of the crown the muted tv was showing the same program as the tv at reject-dentist. Maybe there’s a Dental TV station?
My next dentist thing is “just” a cleaning on December 28 and a tentative permanent crown on January 3.
Hopefully, no more knee related issues until then.
Meanwhile, it’s Wednesday night and Reject-Dentist still hasn’t sent a treatment plan or called to discuss it yet.
This post is officially done…for now

Then, in January, 2023:
1/18/2023
Reject-Dentist still hasn’t sent the receipt, a treatment plan or called to discuss it yet. They did send me an email today asking me to set up an appointment.
Also on 1/18, I went to Reston Hospital for pre-op clearance. This was the third appointment this week, all because of my knee.
1/23/2023
New, Approved-Dentist finished up everything he needed so I got Dental Clearance. This is the final piece of the clearance puzzles

When I got home yesterday I had a new insurance card in the mail. I read all the information and it said I had dental insurance. Reject-Dentist had said that I didn’t so I assumed that I didn’t. Now I get to collect my papers from Approved-Dentist and submit those.
I was supposed to attend a class on knee replacement but the next one isn’t until next month so I got to watch a video instead. I also found this one very helpful:
This post is officially done…for now. Next stop, Total Knee Replacement.

But no, there’s a setback 🙁

On 1/23/2023 I said:
“New, Approved-Dentist finished up everything he needed so I got Dental Clearance. This is the final piece of the clearance puzzles”
At the end of that appointment, Approved-Dentist gave me a prescription for an antibiotic, just in case.
Stupid me. I asked the intake nurse about that. She reported it to the surgeon who moved my surgery from 2/2/2023 to 3/9/2023. If someone else is rescheduled, I might be able to move mine back. Maybe.
Then, other test results came back – staph infection in my nose, maybe UTI.
Wednesday, 1/25/2023

So, I am still limping around, changing all the physical therapy appointments I’d set up for the 2/2 surgery. One of the positives is that I get more time in water aerobics building up my leg muscles.
A very positive:

1/27/23 was our 50-year anniversary. Amazing! We celebrated early with a cruise on the Wonder of the Seas. I’m still assembling those photos/posts but we went a little earlier in the month because it was cheaper 🙂 I chose this cruise because I thought it would be cool to be on the current world’s largest cruise ship. I have been on larger ships but DH has not.
We have another cruise scheduled for the Arctic Circle in July but I may not make it because of the new surgery date and recovery. I am very excited about that cruise because we tried to do something very similar and Covid changed those plans.
Someone pointed out that, since the new surgery is more than 30 days away, I may have to do all the clearances again.
And that someone was right. Another setback 🙁
Thursday, February 15, my heart sank when I got a call from the hospital. After being on hold forever, I talked to a person who wanted to schedule my medical clearance, again. I told her I’d done it before in February for the rescheduled surgery. She said she’d check with my surgeon to see what he wanted.
Friday, I heard nothing until 4:58 pm. He wants to do a medical clearance “revision” whatever that means. So I go back to the hospital next Thursday (March 2) for more testing. If they find some other obscure infection, that won’t be enough time to fix it before the current surgery date Thursday May 9.
March 2, 2023
So, I had the Medical Clearance Revision today and it was exactly like the Medical Clearance I did just over 30 days ago. It looks like surgery is a go. Thursday, March 9 at 12:15.
There’s extra stuff for me to do to prepare, thanks to Cushing’s, the GH deficiency, the Adrenal Insufficiency, the one kidney, etc but I can do it!
March 9, 2023 – Finally!
After going through the Medical Clearances again, 5 days of antiseptic showers (plus another one this morning), drinking what seems like gallons of Gatorade (I couldn’t have the hospital-offered strawberry Ensure), my surgery is scheduled for 12:30 pm today. There will be a Covid test at 10:30.
We have been watching tons of youtube videos on knee replacement, physical therapy I think that this was one of the most helpful:
From the hospital…
As your surgery date gets closer, you might feel uneasy. But the more you know about what to expect, the less nervous you’ll be. Take a few minutes to learn how the day will unfold.
You’ll usually be asked to arrive about 2 hours before your operation starts. A registered nurse will greet you and help you prep. You’ll discuss with them your medical history and the medicines you take. You’ll also get a chance to talk to people on your surgical team about the operation.
Before you go to the operating room, you’ll first change into a gown. The nurse will remind you to remove things like your jewelry, glasses or contact lenses, hearing aids, or a wig if you have them.
A nurse checks your heart rate, temperature, blood pressure, and pulse. The surgeon may mark the spot on your body where the procedure will be done. A nurse places an IV line in your arm so the doctor can give you fluid and medicine during your operation.
When it’s time for your surgery, you’re wheeled into the operating room on a stretcher.
A group of doctors and nurses work together to make sure everything goes smoothly. The specific people depend on the type of procedure you’re going to have. But in general, your team will have these pros:
Surgeon. This doctor leads the team and does the operation.
Surgeons have to complete 4 years of medical school, plus at least 5 years of special training. They also have to pass a national surgical board exam. The one you choose should be experienced in the type of procedure you’re having.
Anesthesiologist. This health care professional gives you medicine that makes you pain-free during surgery.
Certified registered nurse anesthetist. They assist your anesthesiologist and monitor you before, during, and after your operation to make sure you get the right amount of pain medicine.
Surgical tech. They set up the tools your surgeon will use and make sure they’re sterile.
Operating room nurse. They help the surgeon during your procedure. For instance, they may pass instruments and supplies during the operation.
You’ll get medicine, called anesthesia, so that you won’t feel anything during surgery. The type you get depends on your health and the procedure you’re having.
Local anesthesia. It blocks pain in the part of your body where you have surgery. You’ll still be awake and alert.
Regional anesthesia. You‘re injected with medicine that numbs the whole area of your body where the surgery takes place.
General anesthesia. It puts you to sleep during your operation. You get this type of medicine through an IV in your vein or by breathing into a mask.
Once you’re in the operating room, you breathe oxygen through a mask. Your anesthesiologist gives you medicine to prevent pain.
Your surgical team will track your health during the whole procedure. They’ll probably use:
Before the surgery starts, a nurse cleans your skin with an antiseptic to help prevent infections. They may remove hair from the area and place a sterile drape over your body. It will have an opening in the place where the surgeon will work.
It’s rare to get an infection during surgery. Your team does everything it can to protect you. Your doctors and nurses will:
They may also give you antibiotics before your procedure to help prevent an infection.
You’ll wake up in a recovery room. A nurse checks your heart rate, breathing, and the bandaged area where your procedure was done. They might also ask you to take deep breaths and cough to clear your lungs.
You’ll stay in the recovery room until you’re fully awake and all your medical signs, like blood pressure and heart rate, are stable. How much time you spend there depends on what kind of surgery you had.
After that, depending on the type of operation you had, you’ll get sent to a hospital room or back home. Either way, you’ll be ready to be greeted by your loved ones and begin the road to recovery.

This post is officially done…for now. Next stop, Total Knee Replacement.

Nov 06
From November 6, 2017:
As it turns out, I didn’t give thanks yesterday when the Roto-Rooter guy left yesterday as he did absolutely nothing. 🙁
Our troubles weren’t going down the drain at all.
Today, I give thanks and shed a more than a few tears for a wonderful friend, co-worker, choir buddy, special person to everyone he met.
I’m so thankful I got to sing in the choir honoring Tim – and I’m very thankful that this Celebration of Life was live-streamed on Facebook so I can watch and listen again.
At the cemetery, another of our fine tenors led us in singing Amazing Grace. When we got to the verse “When we’ve been there ten thousand years,
Bright shining as the sun…” the sun came out in full force – an amazing God Moment, welcoming Tim home.