Adapted from https://cushieblog.com/2010/11/22/40-days-of-thankfulness-days-thirty-one-to-thirty-five/ Today is the anniversary of my one and only zipline experience. I had been thinking about doing this since my kidney cancer surgery 3 years earlier. I figured I had “extra years” and I wanted to do something kinda scary, yet fun. So, somehow, I decided on ziplining. All the following is …
Category: Memories
Oct 28
Day 16: 40 Days of Thankfulness
Today I am thankful for my church choir. Last year at this time, the “low voice choir” formerly the Men’s Choir sang this: I’ve had a long history with singing from the time I was a kid singing in the choir at my Dad’s church in Springfield, Mass. In High School we …
Oct 27
Day 15: 40 Days of Thankfulness
Today I am thankful that the skunk already passed by when I took Mimi out for a walk a couple days ago! It’s so not fair! I can’t smell lots of flowers or perfumes but I can smell a skunk blocks away.
Oct 26
Day 14: 40 Days of Thankfulness
I am thankful, believe it or not, that I had Cushing’s. Mind you, I wouldn’t want to have it now, although diagnoses and surgeries seem “easier” now. Having Cushing’s taught me a lot, including how to stick up for myself, how to read medical books to learn more about my disease, how to do …
Oct 25
Day 13: 40 Days of Thankfulness
Today, I’m grateful that there have been no more Growth Hormone problems like the one below. Wednesday, October 25, 2017, 11:08 PM on Facebook Me: My $450 monthly co-pay refrigerated medication was overnighted to me yesterday, arrived a couple miles from my house at 7:05 this morning. UPS couldn’t get it to me …
Oct 24
Day 12: 40 Days of Thankfulness
I hope I’m not jinxing myself but today I am thankful that I haven’t had any migraines for a while. It’s not “just” not having migraines, but the fact that, should I get one, there’s nothing I can do about them anymore. I used to get migraines quite often, a hormone thing …
Oct 23
Day 11: 40 Days of Thankfulness
Today, and every day, I am thankful for coffee. Without it, I would have a daily headache and I’d have even less energy than I have now. I first started drinking coffee when I had my first job as a waitress at a Hayes-Bickford in Boston, MA. This was a summer job. A …
Oct 19
Day 7: 40 Days of Thankfulness
TiVo. I love that I can fast forward through commercials and have all my favorite shows waiting for me when I lie down on the sofa (and fall asleep!) I probably wouldn’t have gotten one of these when we did but our son got us one for Christmas many years ago. He had it …
Oct 16
Day 4: 40 Days of Thankfulness
I am so thankful for all my doctors but today I am thankful for Dr. Amir Al-Juburi who saved my life by removing my kidney cancer (renal cell carcinoma). In 2006 I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the …
Oct 15
Day 3: 40 Days of Thankfulness
Today, since it’s a “teaching day”, I’m thankful for my piano studio, my students, and my piano 🙂 When I was growing up, my dad was a minister, meaning we lived in whatever parsonage the church chose to let us live in. The one we had in Pawcatuck, CT had an upright piano …
Cushing’s
- 😊 Welcome! / Cushing-Help.com Support for Cushing's Syndrome and Cushing's DiseaseWelcome to Cushing's Help and Support. This site provides information, support, news, and education for people with Cushing's or other endocrine problems, their friends and families. Cushing's syndrome is a hormonal disorder caused by prolonged exposure of the body's tissues to high levels of cortisol. Cushing's is a debilitating disease which causes the overproduction of […]
- 📚 A Cushing's Collection: A Humorous Journey Surviving Cushing’s Disease, Diabetes Insipidus, and a Bilateral AdrenalectomyDiagnosed with a rare disease that only affects between two and ten people per million, Marie Conley used emails to communicate with family, friends, and co-workers to keep them apprised of the diagnosis and prognosis of Cushing's disease and the many complications she experienced on this journey. Her ironic humor and raw, emotional approach helps […]
- ✍️ TikTok Saved My Life: Student Discovers Life-threatening Tumour After Self-diagnosing Rare ConditionDidn't we all do this? Cleo saved her own life after successfully self-diagnosing cancer/Cushing's that doctors had missed because she researched her own worrying symptoms on TikTok.
- 🏞 Cushing's MemberMapWe're rebuilding the Cushing's Member Map. Add your information (or your doctor's) at https://cushingsbios.com/2018/10/28/we-have-a-new-bio-form/
- ✍🏼 Cushing’s BiosThese Cushing’s bios aren’t your typical “bedtime story” but they tell the truth about what Cushing’s patients go through to get diagnosed – and hopefully go into remission. There aren’t necessarily a lot of happy endings here. If you’re looking for those, look at the ones in the category “Success Stories”. If you see yourself […]
- ✍🏼 Explaining Cushing’s to OthersI am writing this letter to share with you some basic facts about Cushing’s Disease/Syndrome and the recovery process so that you will have sufficient information to form realistic expectations about me and my ability to engage in certain activities in light of this disease and its aftermath.
- ‼️ Message Board Upgrade (and new features!) Coming SoonVersion 4.7.24 of the Cushing's Help Community is now available and includes a security update
- 📅 Cushie CalendarOur Cushie Calendar has been updated with a new look and it's now embedded with the message board calendar.
- 📰 AIs it Possible to Have Coexisting Exogenous and Endogenous Cushing's Syndrome?A 40-year-old female patient, hypertensive for three months and treated with 5 mg of amlodipine, with newly diagnosed untreated diabetes mellitus, presented to the emergency department with severe asthenia, abdominal pain, and vomiting. The medical history revealed prolonged self-medication with dexamethasone at a dose of 1 mg/day for three years in order to gain weight. […]
- 💉 Helpful Doctors: How to Choose the Best Neurologist in Pakistan?Neurological conditions can affect the brain, spinal cord, nerves, and muscles, making daily life challenging for patients and families alike. Whether someone is dealing with Parkinson’s disease, epilepsy, stroke, tremors, or memory disorders, selecting the best neurologist in Pakistan is one of the most important decisions for proper diagnosis and long-term care. A qualified specialist […]
Music and Local Events
- 🎶 Let the Music Dance!, June 14MaryO is in this Orchestra! The Washington Balalaika Orchestra presents an enchanting program of music performed by our own musicians on balalaika, bayan, domra, flute, oboe and clarinet. And for the first time, we are pleased to present medley of Ukrainian folk songs on the bandura, the national instrument of Ukraine.
- ✅ AA Open Meeting, Wednesday at 6 pmDiscover a supportive space for new beginnings! Join us every Wednesday at 6:00 PM, in the serene ambiance of Pender UMC's Library. At 5:00 PM there will be a time of casual chat, known as the "meeting before the meeting". Engage in meaningful conversations and find camaraderie at our AA meetings, guided by the experienced […]
- 🎼 A Celebration of Bach, June 7In addition to the wonderful talents of Pender’s own musicians, we are delighted to welcome special guest artists Veronica Jackson, Heidi Jacobs, and Sean Wittmer. Together, they will bring the beauty, depth, and brilliance of Bach’s music to life in a rich and meaningful program.
- 🎶 Slavic Festival Concert July 11MaryO is in this Orchestra! The Balalaika and Domra Association of America (BDAA) presents our annual Slavic Festival Concert, which brings together musicians from around the world to perform Slavic folk music, including Eastern European, Romani, and Klezmer musical traditions. The performance is an extravaganza, featuring virtuoso guest artists with a 60-piece folk orchestra, all […]
- 🧶 Caring Hands, June 13 at 10 amWe’re delighted to revive our Prayer Shawl / Baby Blanket / Care Bag ministry as an in-person gathering once again! We meet at 10:00 AM on the second Saturday of each month in the Pender UMC Library. This is a relaxed, welcoming time to knit, crochet, talk, and share as we work together. Our handmade […]
- 🍪 DMV Chocolate and Coffee Festival, November 14Bring your friends, family, and appetite for a delicious weekend shopping experience! The top coffee roasters, chocolate makers, gourmet food purveyors, and unique artisans from around the DMV region will gather in Northern Virginia for the DMV Chocolate and Coffee Festival.
- 😥Video from Memorial Service for MaryO's MomMary Alice Tibbetts Kelly lived a long life marked by curiosity, perseverance, creativity, and quiet courage. She survived much, learned constantly, lived on her own terms and cherished her independence. Her legacy lives on through music played, stories written, puzzles solved, journeys taken, and the family who knew her strength and grace firsthand. Mary’s Memorial […]
- 🇺🇸 Memorial DayThanks, Grandpa… You weren’t American, but you fought valiantly for the cause overseas. I never met my grandfather. He had died in Peshawar, India, fighting for the Black Watch during World War l. Peshawar was on the northern frontier of British India, near the Khyber Pass.
- 🕺 National Tap Dance Day!National Tap Dance Day falls on May 25 every year and is a celebration of tap dancing as an American art form. The idea of National Tap Dance Day was first presented to U.S. Congress on February 7, 1989 and was signed into American law by President George H.W. Bush on November 8, 2004. The […]
- 🧻 Don’t Forget Your Towel Today!Each year, May 25 is Towel Day. Do you know why? Towel Day is celebrated every year on 25 May as a tribute to the author Douglas Adams by his fans. On this day, fans carry a towel with them, as described in Adams’ The Hitchhiker’s Guide to the Galaxy, to demonstrate their appreciation for […]