40 Days of Thankfulness: Day 9

 

TiVo. I love that I can fast forward through commercials and have all my favorite shows waiting for me when I lie down on the sofa (and fall asleep!)

I probably wouldn’t have gotten one of these when we did but our son got us one for Christmas many years ago. He had it all set up and ready to go on Christmas morning.

At that time, I had no idea of its capabilities but now, I don’t think I could live without it!

40 Days of Thankfulness: Day 8

40 Days of Thankfulness: Day 7

 

Today, I am thankful for Saturdays.  It’ the one day of the week I don’t have to be anywhere, do anything.  I can do webwork, if I want, but I don’t have any deadlines.

I never have doctor appointments on Saturdays, no medical testing.

No piano students.  I don’t even talk to prospective students on Saturdays.

It’s a day for maybe brunch, a trip to the farm, maybe a little TV, maybe (most assuredly!)  a nap.

Saturdays are family days, even though our family is smaller than it was.

Saturdays are always full of promise.

Off to see what today’s promise is…

This blog post is posted from Cushing’s & Cancer at http://cushingshelp.blogspot.com/

40 Days of Thankfulness: Day 6

Today I’m thankful for Travel.

We’ve been fortunate to be able to travel to several interesting places.

Some, like Iceland, we just lucked in to. We’d wanted to go to Ireland but the travel agent couldn’t get us in at any time over that summer. She did get us a deal where, if we flew Iceland Air, they’d give us a free week in a hotel in Iceland before flying us to London. Duh! Wonderful trip.

A couple years ago we were in Costa Rica and took a day trip to Nicaragua where we stood at the rim of Masaya, a live volcano.

Masaya Volcano, Nicaragua

And a neat train in Alaska (more about this trip here: http://www.cushingsonline.com/Alaska/alaska.htm)

Our bus driver was a very good driver who told us all about the history of Skagway and the surrounding areas. Our first stop was Liarsville (http://www.klondiketours.com/goldcampshow.html), a tent village for gold miners. It was called Liarsville because many newspaper reporters were there publishing tales of how “easy” it was to find gold and become rich. No Way! The locals did a show for us and let us pan for gold. Of course, most everyone found some little gold flakes. A very hard way to make a living!

We made our way up the White Pass on the Klondike Highway to a 3,000 ft waterfall, Dead Horse Gulch (a lot of pack horses couldn’t make it the whole way), the Moore Bridge, Yukon Suspension Bridge at Tutshi Canyon and up over the West White Pass into Fraser British Columbia Canda, the same way that the miners had to walk or go with pack animal and 2,000 pounds of supplies. Much easier by heated bus! It was very scenic and we took lots of pictures. 

At the summit of that, in Fraser, British Columbia, we got on the White Pass & Yukon Route (WP&YR) Railroad train.

The WP&YR was originally built to help those miners who were hauling the ton of supplies up the pass but they finished building the railroad a year after the gold rush had ended. There’s more info about this railroad at www.wpyr.com We went over trestle bridges, through tunnels, over glaciers. Definitely a worthwhile trip.

WP&YR webcam: http://www.whitepassrailroad.com/multimedia/webcam.html

Here’s a bit of our train trip. Tom took this from the platform between the cars:

A very scary road between Stirling and Kinlochard, Scotland:

A helicopter around Barbados (more about this trip at http://beautiful-barbados.blogspot.com/2008/08/wednesday-week-one-helicopter-day.html)

Helicopter

Edinburgh Tattoo – twice!

Panama Canal.  In the volcano image above, I’m wearing the tshirt for the Panama Canal Railway that runs through the jungle.

Costa Rica and the Oh My God bridge.  They took this down while we were there – thank goodness!

And the not so good: Fire ants in Hilton Head, Thunderstorm in the Everglades, Africanized Killer Bee in Costa Rica, …

And most recently, an outstanding Baltic cruise from Copenhagen to Germany, Finland, Russia, Sweden and Estonia.

Slideshow of the “Live Photos” from Russia

Slideshow of the still photos from Russia

Day 5: 40 Days of Thankfulness

 

Today I am thankful for naps, even longer than those on the chart above.  Ever since my Cushing’s days in the early 1980’s, I’ve needed long daily naps – like 3 hours each – to get through the day.

My endo says I’d have more energy if I took more Cortef, but when I do, I gain more weight.  Of course, I *might” have more energy to work off the weight.

<sigh>

So, I nap and I’m very thankful that I can arrange my life to accommodate my long naps.

I’m also thankful that

 

 

Day 4: 40 Days of Thankfulness

 

I am so thankful for all my doctors but today I am thankful for Dr. Amir Al-Juburi who saved my life by removing my kidney cancer (renal cell carcinoma).

In 2006 I picked up my husband for a biopsy and took him to an outpatient surgical center. While I was there waiting for the biopsy to be completed, I started noticing blood in my urine and major abdominal cramps. I left messages for several of my doctors on what I should do. I finally decided to see my PCP after I got my husband home.

When Tom was done with his testing, his doctor took one look at me and asked if I wanted an ambulance. I said no, that I thought I could make it to the emergency room ok – Tom couldn’t drive because of the anesthetic they had given him. I barely made it to the ER and left the car with Tom to park. Tom’s doctor followed us to the ER and became my new doctor.

When I was diagnosed in the ER with kidney cancer, Tom’s doctor said that he could do the surgery but that he would recommend someone even more experienced, Dr. Amir Al-Juburi.

Dr. Amir Al-Juburi has been so kind to me, almost like a kindly grandfather might be, and he got rid of all 10 pounds of my kidney and cancer.

I owe him, the original doctor, and my Cushing’s doctors (who will be featured later!), my life.

 

40 Days of Thankfulness: Day Three

ocms-logo

 

Today, since it’s a “teaching day”, I’m thankful for my piano studio, my students, and my piano 🙂

 

When I was growing up, my dad was a minister, meaning we lived in whatever parsonage the church chose to let us live in.  The one we had in Pawcatuck, CT had an upright piano that someone had put out in the sunroom.  Not the best place for a piano, but I digress.

Since we had the piano already, someone – probably my mom – decided that I would take lessons.  We had the organist from the Baptist church just across the river in Westerly, RI

Apparently, Clara Pashley was fondly remembered at the church (now Central Baptist Church) since she was mentioned in an article from 2010.

 

screenshot-2016-11-04-10-04-33
25-centsMiss Pashley walked to our house each week and taught me (and my mom who was always listening in) piano for the grand sum of 25 cents.

I started with Ada Richter’s classic Teaching Little Fingers to Play, which has now been morphed into the John Thompson library.

From there, it was the Michael Aaron series, and some sheet music.

There was no music store in our town, so I have no idea where any of this music came from – but I still have it all.

My parents did very well for their quarter a week investment, especially since my mom paid good attention and was able to beef up lessons she’d had as a child.  Later on, she played well enough that she was church organist for a local Roman Catholic Church.

But I digress…

In those days, kids couldn’t do a whole lot of activities, so in 6th grade, I decided I wanted to be a Girl Scout.  Bye, bye Clara.

Girl Scouts didn’t last long but I did play piano in a talent show.  I remember, I carefully cut Burgmüller’s Ballade out of my Michael Aaron book and made a nice construction paper cover.  (I still have this, too)

balladeburgmuller

 

I doubt that I played this well but here’s what it was supposed to sound like:

 

A few years intervened and we moved to Springfield, MA.  The parsonage piano there was in terrible shape and in the dark, never-used basement.  But I decided to make it mine and cleared up the area around it and started “practicing”.

My Junior or Senior year of High School I decided I wanted to major in music in college.  I decided to learn, on my own, a piano arrangement of Aragonnaise by Jules Massenet.  I have no idea why or where that sheet music came from but I started working furiously on this piece.

aragonnaise

Hopefully, at some point, it should have sounded like this:

 

 

I started pedaling (no pun intended!) my music to the Universities of Connecticut and Massachusetts and ended up at UMass Amherst since we were state residents.

Early morning gym classes (usually swimming), then wet hair traipsing across campus to music theory in winter 5 days a week.  AARRGGH!

But I stuck it out.

My wonderful piano teacher, Howard Lebow, was killed in a car accident my sophomore year and I was devastated.  There was about him in a post on January 26, 2018 over on https://oconnormusicstudio.com

I took yet another break from piano lessons – but I kept playing.

After DH graduated, we moved to Milwaukee, WI for his graduate school.  Besides working 2 jobs, I found time to commandeer the practice rooms at the University of Wisconsin.  I also found a teacher at the Schaum School of Music.  She was amazed that I had no piano at home to practice on.

When we later moved to Alexandria, VA my DH gave me a choice of new car or piano. So, I found a used piano.  The owner had acquired it in a divorce and wanted it gone.  Yesterday.  She even paid to move it out of her apartment.

The new-to-me piano took up half our living room.  When my parents came to visit, their feet were under my piano as they slept on cots.

I found yet another new piano teacher and she is still my best friend to this day.

That piano moved to several locations before I bought a brand new Yamaha grand piano.  The movers accidentally brought in the wrong one and I made them return it.  The people who lived in an apartment were probably unhappy when they had to return my piano and take their own new baby grand back.

I started teaching as a traveling piano teacher in Silver Spring, Maryland.  I continued that in Wilmington, DE.

When we got to Fairfax, VA I decided no more traveling.  Students would come to me.  And so they have since 1973.

What is supposed to be our living room is filled with music books, electric keyboards, the grand piano, 2 organs, 2 violins, 2 clarinets, a hand-made (by me!) dulcimer and other musical “stuff”.

Piano playing has gotten me through the worst times of my life.  Teaching has been a lifeline for me, as well.

I am so thankful for the students who have stayed with me over the years.

 

40 Days of Thankfulness: Day Two

 

Today, I’m thankful for my “Cushie Car”.

Since I started attending Cushing’s events, I’ve always tried to rent a PT Cruiser. There’s just been something about them that I liked.

A couple of years ago, after my son was out of school, I was getting tired of driving the Mom-Carpool-Van everywhere. I think my mom was getting tired of stepping up into it, too. She doesn’t drive anymore, so she relies on whatever vehicle I’m driving to get her to appointments. So, I was delighted when she offered to pay for part of it. She didn’t realize it was going to be bright blue, though. I think she was thinking of navy or something more dignified.

Anyway, I had the car picked out, and the exact color I wanted and set off to the car dealership with my specs. They told me that the Cruiser didn’t come in this shade of blue. I’m sure that they wanted to sell one of the colors they had on the lot.

I got back to them and told them that I found this car online and I could go get it myself. Suddenly the dealership was able to get it for me, too, so I won out. WooHoo.

I’m just loving this car. 🙂

From a Cushing’s get-together in Columbus, OH, 2007, the yellow version 🙂

 

40 Days of Thankfulness: Day One

 

Several years ago I decided to try Facebook’s 40 Days of Thankfulness and I’m going to post all 40 days here since I know that it will auto-post to Facebook and my blogs.

Although I have had several problems in my life (and who hasn’t?), I’m sure I can come up with at least 40 things I’m thankful for.  So starting later today, I’ll be posting them here.

Today I am hugely thankful that the last major issue we had here was in 2013 when Tom had his heart attack.  That event caused me to start a whole new blog to post about our experiences.

 

screenshot-2016-11-05-06-30-59

 

Adapted from https://maryomedical.com/2013/02/08/the-beginning/

 

January 27, 2013 was our 40th anniversary.  DH called me and said he was leaving a conference in Washington, DC and we’d go out to brunch when he got home.

The next thing I had heard was that he was in the ER with a suspected heart attack.  I rushed to the ER and found him in his cubicle.  He’d had 3 nitroglycerine pills by then and figured he could go home.

Wrong!  They had him stay overnight at the hospital.  January 28th, they decided to send him by ambulance to Fairfax Hospital for a cardiac catheterization and possible stent.

At the end of that, the surgeon came into my waiting room and said that he needed a triple bypass NOW.  Three of the arteries were 100% blocked.  They got me calmed down to see him in the OR.

He was trying to get odds of not doing this surgery and just leaving then.  Finally, I said that he would do this surgery, we weren’t going to fool with this.

I really lost it when they asked me if we had any children and I said 1 son in NYC.  They called him at work in New York and had him get there as soon as possible.  I’m sure he could hear the fear in my voice.

They wheeled DH off for surgery and I waited again.  Luckily, 2 church friends came and sat with me and our pastor arrived about 8:00PM.  Our son arrived about 8:30PM after taking the Acela and a taxi directly to the hospital.

The surgery was over about 9:00PM but when we saw Tom, he was still under anesthesia.  They kept him that way until the next morning since he was too confused when they woke him up.

Long story short (too late!) – he got out of the hospital on the 31st and I played nurse 24/7.   He couldn’t drive/go anywhere for 6 weeks, and then there were 12 weeks of cardiac rehab.

One of the things that came out or cardiac rehab was becoming friendly with 2 other couples (although one of them has since split up).  We go out to dinner every couple months…and none of the surgeons would be happy about our choices.

 

heart-line

 

A slightly different take on the events, written 3 weeks later on the same blog.

Icy Days and Mondays…*

* With apologies to Karen Carpenter!

I know I’m not supposed to “relive” events.  I have done that too often with my Cushing’s and cancer adventures and I’m told that reliving causes nearly as much stress as the original event.

So, I plan to write down my memories here and try to let them go…

It all started on Sunday, January 27, 2013 – our 40th wedding anniversary.  I picked up my mom and went to church so I could sing in the choir.  DH went to a meeting of some sort on Benghazi.

After church, I stopped off in the church office for a goodie bag that the Staff Parish Committee had left.

Dropped my mom off at her house and went home.  I put the goodie bag on the dining room table and logged onto the computer to do some work.

I got a couple text messages from DH:

Text message

I figured I’d take a nap until DH came home for that late brunch.

The next thing I hear was my phone ringing, a call from DH.  He was in the ER at Fair Oaks with a heart attack.  OMG!

I immediately leaped up and rushed out the door.  I called one of my pastors and got to the ER in record time.   When I arrived, he was in a bed, all hooked up to monitors, fluids and such.  He was awake and feeling pretty well thanks to the nitroglycerine they had given him immediately after arrival.

When we had a chance to talk, it turned out that he had been in his conference and realized his chest was getting tight.  He found the hotel’s store and bought aspirin – 3 for $11.00 which he thought was extravagant.  He bought them and took them anyway – and probably saved his life.

On the way home, he was feeling pretty good so he stopped at the mall to buy an anniversary gift.  The salesgirl in Zales didn’t know that ruby was the stone for the 40th anniversary and was kind of ribbing DH for waiting until the last minute to buy a gift.  He walked out of there, felt more tightness and headed to the ER…where he called me.

DH was feeling pretty well thanks to the nitroglycerin and aspirin plus whatever else they had in the IV and wanted to go home.  The staff said no way – he had to stay overnight so he could be monitored.

The “automatic clock” on the wall said it was Monday.  Other rooms said Sunday.  Hmmm

A trainee EMT came in to ask some questions as part of his learning process.  Every time DH mentioned the word “Benghazi”, his blood pressure spiked about 40 points or so.  That term became verboten ever after.

My pastor stopped by and we had some nice chats and prayers.

Time passed, tests were done, doctors and nurses stopped by.  Finally, DH was moved to his room upstairs.

About 9 or so I went home and found our dog huddled by the front door – I had left so quickly I hadn’t left her any lights on.  I imagine she was quite worried.

I can’t even remember what I had to eat for dinner but I really wanted something chocolate.  On a whim, I looked in that goodie bag and there was a double-sized brownie.  I think I ate that in record time and it really hit the spot.

Ice

 

Monday morning (for real!), I checked the weather and found that school was starting late because of icy conditions.  I put on boots and took the dog out.  It seemed to be raining – if it’s raining, it must be warm, right?  So I didn’t really pay attention (and I had other things on my mind!) and completely missed seeing the black ice.

Next thing I knew, I had fallen on one knee, my cell phone in my pocket bruised my other thigh and my left arm hurt where I’d reached out to catch myself.  Luckily, I hadn’t let go of the dog’s leash.

I ended up sitting in a puddle of icy water for a long time, figuring out how to get up.  I finally sort of crawled up the trash can that was sitting in the driveway.

The dog had an abbreviated walk, I changed my wet, cold clothes and headed to the hospital.  I was showing DH my knee and one of the staff bandaged it up for me.  I told him I hadn’t fallen at the hospital and wouldn’t sue but I guess he wanted to be sure.

The hospital staff decided DH should go to another hospital which is world renowned for its work with heart cases to have a heart catheterization and possible stent.  DH was ready to walk out to my car to drive him to Fairfax Hospital.  He wasn’t thrilled when he was strapped to a gurney and out to an ambulance instead.

I headed over in my car.  They’d changed the entrances to the hospital since the last time I was there and I couldn’t find the “Grey Entrance”.  Finally, after wandering around for a long time, I found it.

I saw DH in the prep room where they got him ready for the heart catheterization – then they rolled him away after explaining all the things that could go wrong.

I went out to the waiting room, got some coffee and a sandwich and hunkered down with my iPad.

Eventually, my beeper went off and I was called back to the room where DH had been prepped.  The surgeon was there this time.  She said that 3 arteries were nearly 100% blocked and they needed to do an emergency triple bypass.  They also needed me to convince DH of this since he was figuring he could tough it out.

I started crying but she said I had to get myself together and convince him NOW.  I had to put on scrubs and off I went to the OR.  I got there, DH was on the table trying to figure out the odds if he didn’t do this surgery.  All the medical staff said that he had a very low chance of survival without the operation.  He still wasn’t sure.  He wasn’t afraid to die.  Tough Guy, Yadda Yadda.

One of the nurses asked me if we had any kids.  I said only one, in NYC.  She said I should call him and get him here ASAP.  She even dialed the number.  I talked to DS at work and he agreed to come right away.  He was pretty scared, too.  He later revealed that he had been crying on the train ride.

I went back to the OR, told DH that DS was coming and that he was going to do the surgery like it or not.  I signed the paperwork and sent him to a very scary surgery.

It was about 4:30 by then and I needed to take the dog out again.  They said I could go home – surgery wouldn’t be over until about 8:00PM or so. Got home, took the dog, made sure that there were lights on, and headed back to the hospital.  Another pastor from my church called.  He said he’d be by the waiting room later.

Two friends from the church office texted me to say they were coming over to sit with me in the waiting room.  They got there about 6:30 and we decided food might be a good thing.  We headed out, following a variety of directions and signs and walked for a l-o-n-g time.

My knee was killing me.  We got to the cafeteria and found out that it was closed.  the 24-hour one was elsewhere.  We finally found that, got some food and my cell phone rang.  The surgeon would be coming out soon to talk to me.

We hustled back to the waiting room and the surgeon came out about 8:00 with good news.  Successful surgery!  DH wasn’t awake yet but we could see him about 9:00PM.

The pastor arrived about 8:30, then DS got there about 8:45.  Finally, they said we could see DH although he still was asleep.  My friends left, pastor and DS went in to see him in ICU, sleeping so peacefully with so many lines attached.  The pastor prayed, then left.  DS and I decided to stay to see DH awake.

About an hour later, the ICU tech said they were going to keep him asleep overnight so we went home.

Monday

Tuesday, January 29 – DS called the hospital fairly early and found that DH was still a bit agitated so they were keeping him under a bit. I took the dog out and we got ready to head back.

I got a call that he was waking up but agitated.  He kept fighting with the nurses on the day of the week.  He kept saying it was Monday, even though it was Tuesday.  Surprise, surprise.  The calendar on the wall hadn’t been changed.  It still read Monday.  No wonder that’s what he thought!

We stayed all day, though nurses, techs, doctor visits and such.  He was in ICU so was monitored very well.  DH was quite confused and repeated himself a lot.  He wasn’t quite sure what had happened.

Monday

 

Wednesday, January 30.  DH had been moved from ICU into a regular room and we had to follow visiting hours, even though we were family.  We could visit at 11 and had to leave at 1, then back for 6-8.  Actually, this worked out well since I was able to take my first nap since this whole ordeal began.

DH had called DS early in the morning and said he “needed” his cell phone to make some work calls.  Luckily, DS talked him out of that, saying that he could say some wrong things, given his temporary memory issues.  Thank goodness!  I didn’t want him spending his days talking on the phone.

We got there about 10:45am and they still wouldn’t let us in due to “flu season”.  I’m not sure how we could give him the flu in those 15 minutes before official visiting hours.

I glanced at the whiteboard on the wall where the nurses’ names, doctor’s name and such were written.  Unfortunately, no one had changed this whiteboard since Monday, so that’s what it still said.  <sigh>

We visited – DH got to eat a bit and had started having lines removed.  He thought he might put his shorts on so went into the bathroom to do that.  Unfortunately, he managed to pull the IV out of his hand and bled quite a bit.  The nurse sent him back to bed and said no more of that!

A representative from the group Mended Hearts stopped by with information and a heart-shaped pillow.  They have meetings the first Saturday of the month, so we might go to some of those.

The first pastor dropped by again and we made plans for Friday to pick up DH’s car which was still at the ER.  No one else I know could get it – it’s a standard shift car.

Not much else – visiting, napping, improvements every day.

Not Monday

Finally, it’s not Monday!  Nowhere, nohow.  Just Thursday, January 31 after 4 days of Monday.  Hooray!

DS had a headache so I went to the hospital alone.  He was going to come for the nighttime visiting hours.  As it happened, DH came home this day after lots of testing, last minute X-Ray, discharge notes, complaints about the night nurse…

We got home about 5:00PM.  Yea!

Now the real work began – visiting nurses, medications, doctor visits, rehab.

Since it’s no longer Monday, this post is over 🙂

 

heart-line

Whew!  There was a lot more after the surgery – visiting nurses, cardiac rehab, so on and on.

I am hugely thankful for my pastors, friends, family, people who brought us dinners, all the doctors, nurses, surgeons, visiting nurses, rehab personnel, Mended Hearts, ambulance folks, aspirin, nitroglycerin, insurance, Fair Oaks Hospital, Fairfax Hospital, everyone involved in any way with this escapade.

 

 

It’s National Coffee Day

s

www.public-domain-image.com (public domain image)

 

If you know me, you know that I nearly always have a cup of coffee nearby, at all times.  I’m glad that coffee has its own day now 🙂

 

The date might not be marked on your calendar, but if you are like more than 50 percent of adults who drink coffee every day, maybe it should be. Thursday is National Coffee Day, which means you can find free or reduced priced coffee in many places.

 

 

Enjoy!

coffee-machine

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